It all started when I was born.
I was a healthy, normal baby girl who weighed seven It all started when I was born.
I was a healthy, normal baby girl who weighed seven pounds and eight ounces and was 21 inches long. I had few medical issues but went home the next day. I had a good couple of months until everything turned around.
I started off eating healthy solid foods until I had digestive problems. I also had a hard time sleeping because I couldn’t breathe. My dad took me to the pediatrician and asked if anything was wrong, but the pediatrician dismissed me home with no answer. So my dad just switched my solid foods and thought everything was going to be fine. Well, it wasn’t.
A few months after my dad switched me to solid foods and putting me to sleep upright, I still had digestive problems and couldn’t breathe when I would be sleeping. My dad took me to a few other pediatricians to see if he could get an answer, but, of course, he didn’t. My dad heard about one pediatrician and took me to see him. The pediatrician examined me and told my dad that he needed to examine me overnight. My dad came back the next day to get me and the pediatrician told him that he took some tests while I was there overnight and he was still waiting on the results so he dismissed me home. The pediatrician called my dad within a week with some bad news (by this time I was two years old).
The pediatrician told my dad that I have been diagnosed with a genetic disease called Cystic Fibrosis. The pediatrician explained that Cystic fibrosis is a genetic disease that causes a thick sticky mucus to form in your lungs and will keep growing back. My dad asked if there was a treatment or a cure and the pediatrician said that there is a treatment but it will be hard because I was only two years old. My mom and all the other people in my family were asking why I had it and why it had to be me but my dad never asked why this or why that, he just went along with it and did what he had to do to make sure I would be living as normal of a life as possible. The pediatrician admitted me as soon as possible to make sure I wasn’t going to get any sicker than I already was.
The hospital I was admitted to was called Cincinnati Childrens. The first thing the doctors did was put a pic line in me. A pic line is an IV that stays in you for two weeks and medicine gets pumped into it. The doctors had me admitted for two weeks. My dad stayed with me the whole time except one day and that was due to the fact of he had to stay with my sister because no one was home. The doctors got me healthy and well enough to go home so I did.
In 2011 I was admitted back into the hospital to have another pic line inserted and stayed overnight. I had this pic lie for two weeks and every about five days or so, a nurse came to check the pic line. At the end of the two weeks another nurse came to my house to take it out.Now I’m a healthy living 13 year old who plays sports and loves living and taking in every moment possible because there might not be another one. I’m expected to live until I’m about 50 but I try not to talk or think about it. They say I’m going to cross-over by suffocation, I don’t worry about it too much because once you live in so much terror for over half of your life, you learn to never live like that again which leads me to a quote I live by everyday. One of my favorite quotes, “I think we have to own the fears that we have for each other, and then in some practical way, some daily way, figure out how to see people differently than the way we were brought up to be.” by Alice Walker.